Sunday, 8 November 2020

Finding the right words

Another three and a bit weeks have passed since I last posted so clearly life has been busy....not sure busy is the right word as I've not been doing much at all! The chemotherapy has pretty much "done me in" and I can't even find the right words to describe how wretched it can make one feel. My biggest struggle has been the overwhelming fatigue despite having another top up blood transfusion and way too much rest! Then last week I developed a blood clot in the leg so I am having to jab my tummy twice a day! But onwards we must go with a plan to discuss continuing this gruelling detour with the oncologist this coming week. I saw my surgeon last Friday and we are hoping to schedule surgery before Christmas but time will tell...........

Finding the right words to show our appreciation for the continuing love and support shown to Larry and me comes easily and we are grateful for it all. Larry does the grocery shopping and our generous friends Faye and Kym indulged us with a most generous gift.............
An enormous package of Morris wrapped gifts came in the post from a friend in Melbourne...........thankyou Maree xx 


And some gorgeous chocolates from participants at the SA Quilters' Guild Quilt Encounter class that I was unable to teach. The chocolates were gifted in my very own rope bowl made by Kerryn who took my class.........thankyou all
I received some lovely new plants for the garden when I was able to catch up with Janie and Rosie for lunch some weeks back..........thankyou girls xx
More treats in the post......a magazine from Caroline to enjoy during my chemo sessions and a book of daily inspiration from Laraine.....thankyou again x

More flowers from a cousin and Aunt and a bright bunch from our eldest daughter Emily..........
And all the way from England our friend Ruth sent us some Aussie dollars to spend on ourselves so we are collecting photos with lunch being one of our treats.......thankyou Ruth x She also included some inspirational "Positive Side of Life" quotes..........
More cards have arrived with a Morris scented sachet in one of them............
And in just the last few days I have really struggled with finding the right words when I received two glorious quilts made especially for me. First was from a quilting group from Victoria - Kilmore Quilters who we have spent many fun hours with over the years. Members were instructed to use William Morris fabrics only and I can't put into words what the quilt means to me...........thankyou everyone xx

And just yesterday I received yet another stunning appliquéd quilt made by 14 friends. Another moment where finding the right words eluded me. As a maker of quilts myself it made me realise the joy of receiving and being wrapped in a piece of work made with love by others. There were so many blocks that three of them were turned into a runner.......wow and thankyou everyone xx...........

We also had a special birthday since my last post......little Wade turned three! Emily decided to invite Wade and Sophie for a Halloween party as it was just a day or so after his birthday so the kiddies had fun dressing up and trick or treating. I was so glad I was up to joining them that day........





Beau and Maisie celebrated sports day together since my last post........
The overwhelming fatigue with the bonus DVT has meant my walks have been few and far between especially this past week. The weather has also been quite erratic with chilly and cold one day and quite hot the next. But we did manage a seaside stroll one day and a short walk to check out the wetlands near where we live. Soon they will be dry with Summer but for now the rains have been welcome......

The roses this year have been spectacular and the extra rains have really helped. So we have had several vases full from the garden to enjoy inside...........




It is now 11 weeks since I started treatment and I should be having a few more weeks of chemo, but with the unwelcome side effects including a new one of neuropathy this means we will review it all this week At the moment I have pins and needles in my hands and feet and I cannot imagine not being able to stitch so I do hope I find the right words when I tell the oncologist it is time to stop. Till next time our love and thanks to you all xx

Friday, 16 October 2020

Detour "Dears"

It is 3 weeks since I posted so I thought I had better do an update to say Hi and so I can look back in years to come at this moment on my current health detour. I was going to call the post "Detour Dilemmas" as I seem to have a few of them at the moment! But dilemma seemed too negative a word so with the current situation Detour "dears" is much more positive! My dictionary tells me 'dear' means cherished and adored so it is much more appropriate. My first 'dear' is to all those people out there who donate their blood regularly to strangers something I was the lucky recipient of yesterday for the first time in my life......

The inevitable side effects of the chemotherapy have been a challenge to say the least with just this past week my haemoglobin dropping to 81 and my platelets from 281 to 55 in just one week. So I had the bonus of no chemotherapy yesterday so instead a blood transfusion so I will cherish a few days break. Maybe next week we'll be back to chemo and possibly a platelet transfusion as well. So if you are one of those 'dear' blood donors I say thankyou. My ticker has not been so happy either so a review with the cardiologist might mean a change to my current regime with possibly continuing the way I am for an extra 6 weeks which will mean weekly for a total of 18 weeks....time will tell how my body copes with that. Meanwhile so many 'dear' friends have been helping me through. My friend who has been sending me daily photos from her garden since early August continues to do so. What gorgeous roses she has amongst many other beauties at the moment......



And some special 'dear' quilting friends brought tears to my eyes with this beautiful quilt entirely hand appliquéd and hand quilted using Japanese fabrics. I adore and treasure it greatly........

And more flowers have come my way too..........

I also received this gorgeous parcel in the post from another 'dear' quilting friend Julie Haddrick. Such lovely William Morris treasures in a reusable tin - thankyou Julie and Peter.......
And 'dear' Dot sent me this gorgeous package. One wee worm lost his head in transit so needed repair but they are very happy in their new homes......thanks Dot as always........

And my voucher for meals from 'dear' friends in Bordertown has stocked the freezer once again......thankyou girls.......
Another 'dear' friend made me some fruit protein smoothies and Tim from Lloyd Curzon Textiles turned his hand in the kitchen with a slow cooked chicken broth and delicious Moroccan Lamb.....thankyou both of you.... 
I am almost embarrassed by all this wonderful attention but very grateful. I follow a triple negative breast cancer instagram site and just today I was reminded of how sad it is that mental illness is not looked upon the same as physical illness. A clinical psychologist from the US - Dr Christine Hibbert has been challenging this very concept herself as one of her daughters has struggled with mental illness and now Christine is going through breast cancer treatment it has become more obvious. Christine was the recipient of the Mother of the Year Award in 2018 and you can read more of that HERE. This post from her blog titled What if We Supported Depression like we Support Breast Cancer is truly thought provoking and so very true as we have watched one of own daughters go through this anguish. Sophie is the mother of little Wade who was born at 28 weeks almost 3 years ago so I am sneaking a photo of Sophie from 2 years ago when we made a donation to the NICU Wade spent 12 weeks and a link to Sophie's own blog Southern Altitude.......
It sure makes you realise how there is still such a stigma and lack of understanding with all aspects of mental health and illness. October is breast cancer awareness month across the world and one of Australia's large bakery chains has been supporting this cause for 20 years this year by holding their Baker's Delight Pink Bun Campaign with 100% of sales going to the Breast Cancer Network Australia organisation. So Larry did manage to buy a pack.......
I have managed to do some return gifts with some flowers to the 'dear' staff in the Oncology unit that have been a part of my life for that last 9 weeks and these were the flowers a week on......
I also made a thankyou gift for Kerryn for teaching my class at Quilt Encounter last week and glad I could do that as I have not been doing much stitching of late.....
I've not been seeing the 'dear' kiddies as much with being vulnerable to infection but we did have an outside visit by the seaside last weekend......and Beau is sporting a grand new haircut as well.......

We have missed 'dear' Wade terribly as well and it was delight to receive this cheeky image during the week from his other Nanna who said she was glad he hadn't worked out how to wind the lipstick up!!!......
So I think that is all for now. Our garden is full of colour with the warmer weather and that makes me smile especially when we manage to get a few blooms inside. Thanks for all your thoughts and wishes and take care and stay safe.